This girl though, she just rolls with the punches. She’s as happy as can be. We tell her that food gives her ouchies in her belly, so she doesn’t ask for food anymore, she just requests a bowl and an at my age I’m not a snack shirt spoon at dinner time and happily pretends to eat with us. She’s such a champ, such a joy, I love this sunshine of mine.

at my age, I’m not a snack shirt

new at my age I’m not a snack shirt

We will continue to search for answers. As of now, we have been instructed to just keep her on Neocate, her hypoallergenic formula. This is the only formula/food we’ve found that she doesn’t vomit and have GI bleeding/colitis with. There is an at my age I’m not a snack shirt issue with the bioavailability of the phosphorus in this formula, leaving some children who rely solely on this for nutrition with multiple broken bones, so we are supplementing this and other vitamins and minerals that the formula isn’t providing for her age.